Reach out to others who also share your Chronic Illness (EDS) #EhlersDanlossyndrome

I was scrolling on Twitter when I read a tweet from a guy who was extremely frustrated with his EDS as well. I shared with him my blog, and he was extremely thankful. Don’t underestimate the power of reaching out to others with your Chronic Illness. Many people disregard EDS as an illness that isn’t important or non-existent, and wrongfully classify you as lazy and incoherent. Please visit https://www.ehlers-danlos.com/what-is-eds/ for more information on the illness.

I was supposed to receive disability checks for this illness since age 18, and I have not, since the system in the USA is so pathetic. I’m currently doing the paperwork yet again, even though a geneticist confirmed years ago that I had EDS. My application got denied a few years back. Then I lost my health insurance when I lost my job. Then COVID-19 happened and shut down hospitals for 2 years straight for normal visits. Then I had to wait to get health insurance again. Then I had to transfer paperwork. More visits. My disability paperwork has yet to be approved, while everybody on the news, companies, corporations, and hospitals are smiling and cheering that we support people with a disability.

I’ve been missing disability checks for about 21 years now. That’s enough to pay 73% of a entire house mortgage.

We really need #MedicareForAll.